Saturday, December 31, 2016

4-6 WEEKS AFTER OP

NORTH ARGENTINA
McCAW HONDURAS

COPAN MAYAN RUINS HONDURAS
LAKE SOUTHERN CHILE 

COPAN RUINS

COPAN

By now I was managing the only real side effect (SE) pretty well and managing to get up once a night (occasionally twice) with no other noticeable effect .
Far better than I'd imagined😆
I've known all along though,through my reading and research,that the radiation effect would be unlikely to be a big factor for the 1st month or so,and would probably click in in month 3 or 4 before hopefully beginning to subside.
I was scheduled to see my urologist and oncologist on 13th December,for the 1st time since my procedure.
The idea was to have a scan beforehand so we could see where the 62 pellets that had been planted were ,and to check that no migration had occurred to bladder/urethra etc.
Apparently one or two occasionally do ,but apparently don't present too big a problem due to the limited range of these rice size titanium encased palladium capsules (a few mm).
The half life of the palladium version (60 days) is longer than that of the alternative iodine version and designed to give off less radiation for a longer period.
Another interesting aspect of brachytherapy is the fact that it lands up delivering around double the dose of radiation as that of external beam radiation therapy directly to the affected organ.
Because it is placed directly inside the affected organ,IT generally doesn't affect the other healthy tissue and organs much in close proximity (i.e rectum/bladder/urethra/testicles).

Normally one's 1st PSA test would be after around 6 months or so ,as it apparently takes a while to begin killing these "bad boy" cells.However I decided to have a test before my consultations,to see whether there had been any substantial decline in my PSA,which had last clocked in at a high 10,3 (pre-op).

I wasn't really expecting any fireworks at this early stage and would've been happy with a reading of say 7/8/9 even.
I was pretty "bucked"when I picked up my reading (which had been forwarded to my urologist) to see that it'd dropped appreciably to 3,66!
Wow......something seemed to be working!
I saw my urologist 1st and the consultation lasted no more than 10 minutes (mainly to thank him for what appeared to be a job well done) as I had nothing but "good" news at this point and all seemed to be going pretty great at this stage.He was also surprised at this appreciable,early PSA reduction.

Then straight off to the CT SCAN people,who had me lined up for an MRI (I was virtually in the "can" already) before I raised the fact that I couldn't understand the reason for a full MRI when we were really only interested in seeing the capsules in my prostate.
At the last second,before I was about to enter the capsule, the technician agreed to check my query out ,only to discover that a Mr. LEATH (my name's HEATH) was supposed to undergo the %$#@ing MRI,not me.
PHEW!!!A CLOSE CALL (I hate MRI's)

30 minutes later I was with my oncologist who ran through the placement of the beads indicated on the MRI,and seemed very happy with the result.
A few quick questions on any SE's that I might be experiencing and,15 minutes later,I was on my way home.
WASHED AWAY ROAD ANDES

Friday, December 30, 2016

4 WEEKS POST-OP



 Four weeks post-op and the swelling and trauma to my nether region has settled admirably,with the effects of the radiation still barely discernible as that aspect should only be starting to "click -in" around now.
Still no need for any meds,apart from a daily anti-inflammatory,more for my bit of carpal tunnel syndrome (in the wrists) than anything else.
It seems logical though (to me at least) that a daily anti-inflammatory should be beneficial in that Dept. too?
LA PAZ PALACE GUARDS
4500m IN THE ANDES
At this point I was waking 2 to 3 hours after retiring and then again early morning (around 4:30) ,so twice/night most nights.No big deal!
During the daytime I made a point of taking in as much liquid (mainly water) and the flow was surprisingly good most of the time.
The only time it became a little "putrid" seemed to be my nocturnal visits,where it appeared difficult to empty my bladder completely,and where I found that by simply waiting 10 minutes after the 1st attempt,some sort of "muscle memory" clicked in and sorted that problem out the 2nd time around.
No burning or pain of any sort,and it appeared that everything was still functioning ok (know what I mean "nudge,nudge,wink,wink").
4500m ABOVE RAIN CLOUDS BOLIVIA

It appeared that,depending on what I drank and the amount involved,my urinary function was returning to normal (or around say 80%) provided properly managed.And this without any need for the dreaded meds!
Alcohol was,at this stage,pretty much out of the question as this really stuffed up my nightly habits and could have the effect of necessitating visits to the loo virtually hourly!
Coffee however (before midday) appeared to be absolutely fine provided I diluted it with the other good (clear) liquids.
LA PAZ GOVERNMENT BUILDING
All in all everything was going a hell of a lot better than I'd expected and I was quietly optimistic at this point.Of course any effects of radiation could stuff this up in the future,but so far so good😏



4800m ARGENTINA/BOLIVIA BORDER IN ANDES




Thursday, December 29, 2016

BRACHY OP-21st OCTOBER

FLOWERS JAIPUR
Add caption
ASLAMS HOME
ASLAM AND ME
KIDS OUT OF SCHOOL


 India was amazing but now I was back home and would be undergoing the brachy within a few short weeks.
To be honest I was sort of looking forward to "biting the bullet" and getting it over with.
I'd made this decision more than a year ago but had had to have the pre-op first to ensure no blockages after the brachy ,which is going to affect the urinary function,in some way.
I mean after all sticking 60 to 70 little radioactive pellets right inside a living organ is without doubt going to result in initial swelling,from the opand eventually as a result of the ongoing radioactivity.Thus the need initially for the first procedure,which had been totally successful.
Seemed a pity to mess with that now 😒
The 21st October arrived and I duly rocked up at 10:30 am to check in for the brachytherapy.
Was booked in for the pre-checks,donned the silly "pyjamas" exposing my buttocks ,and lay around waiting for the meat van which arrived at 12:30 to take me through to theatre.
Up till the age of 60 I hadn't ever really been subjected to hospital culture and had barely seen a doctor in the previous 30 years (*I had a GP who I hadn't even realised had retired).
In the past 3 years ,since diagnosis however ,I'd undergone two biopsies (this was to be my 3rd),two MRI's,and the recent bladder snip/TURP.
I was kinda getting used to this now!
After a short wait I was wheeled into the surgery where my urologist and oncologist were preparing.
A quick chat and before I knew it I was "lights out"!

PUSHKAR

I clambered out of my stupor and asked the time.It was 3:30 and I'd been in theatre for a couple of hours.
No pain at this stage .I'd been expecting to stay overnight at least ,and understood that I might still be catheterized after the procedure.Quick check.......no I was catheter free 😊Oh joy!!!!!
My urologist arrived a couple of hours after and reckoned that,provide I could pass urine,I could go. home.
Drank litres of water and sure enough,by 5:30 I'd managed to pass the most painful ever 200mls or so of bloody urine and was on my way home.

I had no illusions regarding the next few days/weeks/months and had prepared myself for the worst.
My main reservation was the meds I'd need in order to pass urine effectively for the next 6 months to a year.From my research it appeared evident that this was a given ,and that I'd definitely be requiring at least one of these terrible meds/day to pee effectively.
I asked my Doc (urologist) and he prescribed them ,along with some painkillers,and wryly commented that I could "try" getting by without........but I could see he wasn't convinced.

The 1st night was a fairly sleepless one where I needed to get up virtually hourly as it felt virtually impossible to empty the bladder totally.
It also burnt like shit but was slowly subsiding to a point where.by next morning ,it wasn't a real problem.
I still hadn't needed the painkillers and hadn't taken any FLOMAX or the likes,although God knows,I probably needed them?
For the first few days my scrotal area and bum were a little sensitive to sit on so I ended up using one "cheek "or the other.
I was curious to see what the area they'd operated through (the perinium) looked like and probably shouldn't have.
When I finally figured out a way to ....basically look at my own arse (with Cheryl's vanity mirror) I was shocked to find a "very sensitive" area of my body which looked as though it had gone 15 rounds with Mike Tyson.
It was basically black and blue !!!!!
However ,no longer that sensitive.
I was back in the gym after a few days (half pace,which nowadays is "dead slow") and on the squash court before the 1st week was through.
The after effects of this one were probably lesser than the previous op and ,after 2 weeks the only SE I had was the expected nocturnal awakening to half empty my bladder.
By week two however I'd managed this part of the process to a point where I was able to sleep in 2 to 3 hour stints,depending on how much I'd drunk and when I'd stopped drinking.
Soon realised that all of my evening drinking activity needed to be over by 6pm to allow my bladder to be reasonably empty by the time I retired at 10/11pm.
PUSHKAR
On awakening I'd pump copious amounts of tea/buchu tea/red tea/pomegranate juice/water through the system,hopefully acting as a cooling system for the bettter part of the day while the radiation was at its peak.
So far so good!
I was thrilled at the lack of SE's so far and particularly by the fact that I was managing without the use of any meds whatsoever.

YAAAAAAY!!!!!
HOTEL
ASLAMS JEWELLERY WORKSHOP

PUSHKAR
PUSHKAR HOLY WATER





SOME VERY LOCAL CUISINE

Wednesday, December 28, 2016

THE BIG DAY APPROACHING

PALACE JAIPUR
ANOTHER PALACE JAIPUR
ROYAL ENFIELD
I'd been wanting to check out India for some time now with a view to carrying out a bit of a "recce" for a future motor cycling trip through the Himalayas ,and other parts of India.
My two daughters had been doing business with a contact in Jaipur who we'd discovered via some Canadians we'd met on a m/cycle trip in Greece in 2012.
They'd been doing business with a really nice guy (Aslam Khan) there since then ,but had never visited India to see what was available firsthand.

JEWELLERY WORKSHOP
So I suggested we pay India a short visit before the "dreaded" procedure as I had no idea (well some at least) of how my travelling might be curtailed once I'd had the Brachy?



PALACE JAIPUR
PUSHKAR HOLY CITY MARKET


When travelling (especially by m/cycle) one's toilet habits need to be pretty well managed (especially in India) as one never knows when the "call of nature" might scream out whilst in a plane/bus/car/m/cycle and nowhere near a decent "facility".

The girls were going for around 9 nights as they had kids to consider and I'd "holang" around for a month or so ,and check out the possibility of purchasing a ROYAL ENFIELD BULLET (made in India since 1953) with a view to travelling for a few months and then re-selling the bike through Aslam.
By this time around 5 or 6 months had elapsed and everything was working 100% since my last operation to free the plumbing a little.
I'd be returning at the end of September and would have another month to feel sorry for myself on my return w.r.t to my upcoming procedure.

MY DOUBLE-AMITABH
Oh,that last pic is my "double" who just happens to be the most recognised face in India.
Amitabh Bacchan has been (and still is) the most recognised BOLLYWOOD actor since the 70's and not a day passed where i wasn't mistaken for him and subjected to selfies with the local populace.

I've had a little taste of stardom and it's not so bad!
I reckon I've probably given him a pretty bad name though as waiters couldn't understand why this multi-billionaire was only tipping 15%????
Oh well,perhaps there's some money to be made on my next trip?

Monday, December 26, 2016

LEAD UP TO THE BRACHY

MACHU PICCHU
So ......3 months on and all good to go.
As I've mentioned.......no side effects and peeing like a horse.
Couldn't believe the improvement,and it seemed a pity to have to enter into a procedure which was definitely going to mess with that aspect....at the very least!
Tis is the problem with this %$#@ing disease.......one enters into a realm where one seems to be taking something that's not really broken (no symptoms) and deliberately break it in order to fix it in the long term!
Not an easy one!
NORTH ARGENTINA
Here I was now,meeting at rugby and downing 3 to4 pints without any bladder problems......just like I had 10 years ago or more.
It seemed a great pity to mess with that?
There was absolutely no doubt that :

~there would be problems peeing (initially at least and possibly for a protracted period)

~a bit of pain

~blood in the urine followed by possible clots later ,blocking the pipes somewhat

~burning on urination ,which gradually would probably become more chronic as the radiation clicked in

~potential ED and incontinence,either temporary or more permanent

~potential temporary bowel problems for some period

~worst of all,the necessity to take those %$#@ing alpha blockers indefinitely after

But the old PSA was gradually creeping up and had just gone over the "magic" 10 mark.
MACHU PICCHU
LA PAZ CENTRAL SQUARE
The biopsy (my 3rd) that had been taken in the last procedure comprised a 14 core targeted operation which ,(thank God) had indicated that my GLEASON score seemed to have remained the same (6) and showed that the cancer had not seemed to spread much.
It was also still not apparent with a DRE and seemed thus very much contained in the prostate.

The date for the big one had been set at October 21st 2016

SHEPERD ON THE ANTIPLANO


LLAMA'S IN THE ANDES (3500m)


Tuesday, December 20, 2016

4th APRIL- BLADDER SNIP/PARTIAL TURP & BIOPSY

The 4th April 2016 arrived and I duly rocked up at Constantiaberg Mediclinic with mixed feelings.
Firstly ,this was not what I'd originally envisaged (i.e. a one-off brachy exercise) but was essential to prevent complications in the after effects of the subsequent brachytherapy procedure.
And secondly,......I'd obviously read up in detail .and followed "threads" of recent patients who'd undergone similar operations and,as per usual,there were many "horror" stories of the after effects.
As my urologist always says though........."don't pay too much attention to 'doctor google' Tony!"

I reckon he's right as proved to be the case in my instance.
After around 2 hours of surgery I was wheeled out and came to soon thereafter with a catheter up my you know what but no pain to speak of.
Well I guessed that they'd been administered in the drip (which i was still on) during the procedure ,and I'd feel something later,when the anaesthetics wore off totally?

I was also hooked up to an aqueous drip which was clearly flushing water through my system at a rate of knots as they were replacing the 2 x 3 litre bags every hour or so.
At this point there's no need to take in much liquid (by mouth) as the "flushing" process was due to continue during my entire stay,which was expected to be 2 to 3 nights.
So, no pain ......no problem "peeing"....all good so far.

I was surprised to see that the stuff being flushed through ,which had initially been pretty red with blood,started clearing quite quickly and soon became a pinot noir.
As it turned out I was eventually in for 2 nights and,on the 3rd day (after some 300 litres of flushing),they came to extract the catheter.
Still no need for any painkillers since the operation,and I'd (unusually) elected not to take the FLOMAX (or any generic) as the side effects of these drugs ,which I'd tried before the operation,were absolutely terrible.
My worst fear was that it'd be necessary to go onto them,medium to long term,as is often the case in such ops.
They invariably made me feel fluish ,with a head that felt like someone had stuck a beach ball over it and not allowed for any breathing holes!General dizziness  and fatigue were two other side effects I wished to avoid at all costs!

Quite strange having a complete stranger fiddling around with one's nether regions as if she were a plumber who's come to clear a blockage.
She assured me that there would be no pain............%$#@ing liar!
As she pulled the last bit out (it extends right through the urethra into the bladder which has just been sliced and shaved to bits!)  a hell of a sharp pain and then all good.

So now ,the next problem, if I was to avoid be re-catheterised (which is apparently often the case) was to be able to pass a certain amount of bloody urine (of an appropriate rose hue) before they'd allow me home.
I'd experienced something similar with the previous 2 biopsies,where the 1st few were extremely painful,so I knew more or less what to expect.Or so I thought!
Difference here was that this op is done completely via the urethra (don't ask me how) and included some cutting where the bladder meets the prostate,as well as what amounts to the "shaving" of some prostate "meat" around the urethra.
Well 1st of all I found it almost impossible to pass any fluid at all......and the "dribbling" bit that I did manage was literally like peeing razor blades!
I  had probably drunk about 2 litres (at least) in the past hour and,if I were to be allowed home I was expected to pass around a minimum of 300ml ,which was expected to now be more of a light rose in colour (i.e. very little blood).
Well shit man......as hard as I tried (I had visions of that catheter being re-inserted) I managed a mere 70ml and it appeared that I was doomed to spend another night eating inedible hospital food.
But worse still,not being able to pee and having that thing shoved up my dick again (they'd inserted the previous catheter whilst under anaesthetic).

I eventually manage to convince the sister to let me go home and she warned me that she'd probably see me sometime that night,back in emergency to have a catheter inserted.
With all of these procedures initially one is faced with a very weak flow,blood in the urine,a bit of pain (burning really) and an inability to empty the bladder resulting in very frequent urination (anywhere between every half hour and an hour or so initially).
And the "catch 22" here is that it's absolutely imperative that one is constantly taking in gallons of water which is impossible to release very quickly,in the normal manner.
BUENOS AIRES

Anyway,we made our way home where I lay on the couch in front of the TV alternately shoving liquid down my throat,and shuttling back and forth to the toilet to allow a dribble or two to pass even though my bladder felt continuously full.
Eventually the burning subsided somewhat but the frequency continued,so I spent the first few nights sleeping on the couch in front of the TV,with my dingly bit dangling in a plastic glass which I emptied from time to time through the night.
My urologist had warned me of these initial effects ,but had assured me that they were likely to eventually subside and disappear over time.He said I'd curse him initially ,but eventually thank him!
LAKE DISTRICT SOUTHERN CHILE
Well he was absolutely right on both counts.
A month later my flow was probably at the level it'd been before the op.
Two months down the line 90% and quite a bit better than it'd been before the procedure.
After 4 months I was peeing like a 25 year old ,and inviting my mates to peeing competitions......with no side effects whatsoever.
No ED ,no problem peeing (I hadn't realised how restricted it'd been) nothing.....NADA!

PUERTO MERINO GLACIER
I've come to the conclusion that,knowing what I now do,I'd certainly have opted to carry out this exercise anyway,even without the cancer and brachy as motivation!
Since then I've realised (through discussing with mates) that many of them have had such procedures (due to enlarged prostates),some in their 40's and have landed up improving their quality of life immeasurably.
None of them however....ever.... discuss such matters out in the open without prompting??
Strange, but that's how guys think?

PERITO MERINO
Surely any intelligent being would realise that he's not going to learn a hell of a lot about such afflictions (and their resolution) without intelligent dialogue in the matter??

I don't get it!That's why I set up this blog.
Ironically,in the week or so since beginning this blog,absolutely no one has yet commented on a post?
Oh well.....perhaps one day my grandsons will take note and eat their tomatoes?








Sunday, December 18, 2016

PROCEDURE DATE?

ADRIATIC ANTALYA
So next step.........set a date!
It was January 2016 and i'd upgraded my health plan (just in case) which one is entitled to do at the beginning of each year.
My oncology benefit,previously set at R200 000/annum doubled to R400 000 and of course my previous "hospital plan" became useful for most other likely consultations etc.,albeit at a premium of around 3 x my previous monthly subscription.
Aaah well.....can't take it with you!!

After much thought in the matter,and a 2 year hiatus since diagnosis,the date of 4th April 2016 was set in stone.
My oncologist (also a new one) warned me that,once I'd"signed on the dotted line" I'd be liable for some costs if I were to chicken out en route!
Oh by the way..........my new oncologist had gone into the different available radiation methods in great detail,taking the trouble to show me graphs and research data which (provided one understands this type of data) spelled out the efficacies and potential shortcomings (side effects) of each.

They very clearly led me to my ultimate conclusion to go the brachy route!

One last check though on my "flow rate".Huh?I'd had one at just about the time of diagnosis and it wasn't great!
At the time (as previously mentioned) the one "symptom" I'd experienced was a fairly putrid "flow rate"when my bladder became too full.
My normal "breaking the seal" when drinking beer at a pub ,which had previously come in at close to 3/4/5 pints was now far lower,and when I tried to go with the bladder full experienced considerable difficulty "kickstarting".
I often ended up coming straight back just 30 minutes or less later in an attempt to void my swollen bladder.

It's imperative, when undergoing brachy, to be able to pee freely as the procedure,and obvious after effects of a shitload of radiation pellets (I had 63 eventually) swells the prostate and can cause cystitis and bladder infections,resulting in serious potential problems in urination.
AMPHITHEATRE EASTERN TURKEY
This (and ED) I wished to avoid at all costs,in that order!
The "flow" test involves filling ones bladder to absolute capacity and then peeing into a cylindrical device which pumped out your "flow" rate from a printer connected in the office.
Well now I understand the feelings experienced by a poor student!.
I've always been a pretty good student so this was the 1st test I've ever failed dismally........on 3 separate occasions!
Each time i returned with a bursting bladder,only to "lock up" !
One is expected to pass around 350ml and each time I could barely manage 100ml and left with a full bladder.
In such situations,provided I didn't allow my bladder to fill up I was half OK,but a full bladder was my nemesis!.
EPHESUS NEAR SELCUK
OK.......so what was plan "B"?
ROMAN BATHS HIERAPOLIS
PENSION SELCUK
ANTALYA

Another consultation with my urologist ,who explained that,unless my flow rate was "x" brachy was out of the question and I'd either have to go the dreaded RP route or alternatively do a "pre-op"consisting of:

~a bladder incision where the bladder meets up with the prostate to create a sort of a "flap" where my tight prostate was restricting the urethra
CUISINE AT PENSION SELCUK
~at the same time a partial TURP (trans urethral resection of the prostate) which involves scraping (shaving really) some of the offending prostate tissue placing pressure on the urethra

My oncologist had previously suggested (strongly) that i should undergo another targeted biopsy before brachy but I'd chosen to forego her sage advice as I wasn't keen on having two major procedures (the above procedures are considered major operations).
So here was the opportunity to go "all out" so to speak as i was going to have to have all of the above anyhow whilst under.
I suggested to my urologist that he do another biopsy (at the same time) to check on the "progress"' of the disease since diagnosis some 2 years prior.
It's most important ,if brachy is the only form of treatment,that there is very little chance that the disease has become a higher GLEASON score than 7 and is contained inside the prostate.

So....in for a penny in for a pound.....as they say in the classics!
My set date of 4th April was to be set up for this procedure and hopefully,at the same time,provide me with a little extra support for brachy if the disease hadn't progressed too much.
If not It'd be back to the drawing board (again).

Shit man......who said it was going to be easy?